Voice of a caregiver: call for action for multidisciplinary teams in the care for children with atypical hemolytic uremic syndrome
As you are all aware, that there is a need to involve multidisciplinary teams in involvement of rare diseases like aHUS. Today we publish an Editorial in ‘Pediatric Nephrology’ journal with aHUS Alliance Global Action, Dr Christoph Licht and team to create more awareness about the need for multidisciplinary teams in education and formulation of treatment plans, and also the need to have active participation of patient advocacy groups as well.